As the title of this entry says; there are lots of movements in my life as of late.
Because of an article we read on Facebook sent by a friend of a friend, we discovered that I have Hashimoto's thyroiditis. The article depicted exactly how I have been feeling for the past 20 years. So I had my doctor send me my medical file, in order to find correlations between the disease and my symptoms...only that they have know about it since 2003!
I am treated for hypothyroid problems, but not specifically for Hashimoto. Hashimoto is an auto-immune bastard and it can be misdiagnosed as fibromyalgia, depression and so many other things that it would just be too long to name here. The doctors have always treated me like some hypochondriac woman because I kept telling them I had "new pain" coming on and wanted to know why. Fibromyalgia (for which I was diagnosed at the end of the 90s) does not explain all the pain I have and the other problems that have been accumulating for many years. Fibro is not supposed to get worse. It is changing, morphing, but does not deteriorate one's body. I am deteriorating, but doctors do not believe me. Hashimoto explains all of that. It is written in the beginning of my file and not anywhere else in the file. At the clinic where I go, I change doctor often (not by choice) because it is a clinic where the students finishes their diploma as doctors (don't know how to call those in English, sorry) and I only see each doctor a few times (maximum 4-5 times each). And they do not read my entire file each time, so the information about Hashimoto got lost...
Now, I have to fight to find an endocrinologist so I can be treated for that disease properly and, maybe, get to live a normal life after 20 years of waiting and being treated like crap by the entire medical corps.
In my medical file, I also discovered other things they decided not to treat. In 2013: a thrombopenia, which is a decrease of thrombocytes, commonly known as platelets, present in the blood.And that HAS to be treated...and it wasn't. There is also, more recently, an iron deficiency, which is not treated either. I discovered all of that reading my analysis in my file. I know I am no doctor, but I know where to get the information so I can understand things and learn.
I am frustrated and angry that they stalled for 20 (because I have been sick since 1995).
Hopefully, now they will take me seriously. They might not like me putting their nose in their own shit though... They made a huge mistake and I am the one paying for it...
I just hope the nightmare will be over soon...
Other than the health stuff, I began carving more seriously. Okay I use a dremel, but it only is because my hands would not be strong enough to carve with "real" carving tool in a more traditional way. So, I have fun and it is all that matters!
And...wait a minute, did I develop yet another hobby?
Oh damn... lol